Cath.Music If You Knew What I Have Done For You Life With a DiaPort

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Life With a DiaPort

If I had to sum up my life with Diaport in one word, it would be “wonderful”.

My 10 year old son has had type 1 diabetes for over 9 years and is one of the few people in the world who is “allergic to synthetic insulin”. He has a rare condition called lipodystrophy – severe tissue wasting at the injection site that caused uncontrolled blood sugar levels.

Due to lipodystrophy, I was no longer able to continue insulin injections and had to look for another delivery method.

We first had a diaport herd in 2004, but the doctor told us it wasn’t an option for us because he was still a kid and there was no place for an implant to be placed.

In 2008 my son became seriously ill, his Hba1c jumped to 11.2% and his general health deteriorated. When I started looking, I found that he only had two real options.

Option 1 was Portacath, which was not designed to be used with insulin, required permanent hospitalization, and was at high risk of using insulin IV.

The second option was DiaPort. It was designed to be used with insulin, but was not available for children and was not available in Australia.

As mothers, you want the best for your children and will do everything in your power to ensure that they have a normal life, so our decision was not a difficult one. Let me do it.

Pulling some strings, we headed to France for implant surgery.

On October 3, 2008, something great began.

Hypo was a new experience as the diaport and insulin worked within minutes of surgery.

Since surgery, he has been ‘normal’ at home for 8 months with no painful injections or fluctuations in his blood sugar. This allowed him to bring his Hba1c down to 8.2% of his. The overall improvement in his health has been remarkable. No one could have predicted it.

Using DIAPORT changed our lives more than we could have imagined. Changing lines and insulin is painless and the current control is great.

However, I’ve had a few infections at the DiaPort site that required hospitalization and antibiotic drips to clear them up, but that’s a minor issue for the quality of life my son has experienced over the last eight months.

Hockey, swimming and being a kid are great.

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